Archive for the ‘Friends’ Category
So it’s confession time. Why not? There’s no better time than the time where I have had a personal melt-down at my oncologist’s office because his timing for my treatment sucks. What sucks more is that he refused to change my treatment date and then refused to sign off on my medical records so I could travel.
On September 28, 2010, I was diagnosed with bone spurs, bulging discs, arthritis and broken lumbars in my back. Walking is excruciating. Sitting is intolerable. Standing for more than five minutes is impossible. I spend a good amount of time in bed, a heated, waveless waterbed. That caused a blood clot to form in my lungs, and I was hospitalised for a while with that.
All last month, my friend Matt had been helping me get around. My goal was to be able to go to a close friend’s wedding in November. However, on November 6, I was scheduled for a treatment. This is where I got upset with Doc Mick. He wouldn’t sign off on anything, and he wouldn’t budge with changing the date. Either we play by his rules, or we don’t play at all.
But I played the game, hopeful that by November, I would be able to sit, stand, and walk, if even for a day. I had a reason to get well, and I had a reason to try. I was given three medications. Mixed with what I was already taking, these extra drugs made me sicker. I had 16 hour sleep stretches. I vomited daily. This caused me to lose a cap and Dr. Petit wasn’t too happy with that. Vomiting isn’t covered with my original dental warranty. The medicine made my head spin. It was like permanent LSD trips. I hallucinated. Saw writing on walls. I woke up clenching both remotes just last week. But I was hopeful. Hopeful that I would get well and things would get better. I was hopeful that I could have somewhat of a normal life.
But in the immortal words that I said at the peak of my meltdown at Doc Mick’s:
I am not going to get well.
I will never be cured.
[He] can’t cure me.
The copious amounts of medicine can’t cure me.
[The Great Being We Call God] can’t cure me.
This is all just a waste of my time and my money and I quit.
With that being said, I will not be going back to treatment in December. I will not be going back in January. It’s done. I quit. I was supposed to get better. I was supposed to go through physical therapies and be able to make a drive to Dallas. I was supposed to get better. Have I already said that? Oh.
I worked hard. I forced myself to do things even when I did not feel well or feel right. I forced myself to get up, get dressed, brush my hair, take a bath every night because I thought in the end I would feel better, accomplished. I forced myself to drive from Sand Springs to Jenks, at least once a week. I forced myself to stand for at least twenty minutes a day to build up a tolerance. I cut waaaaaay back on my pain medication because I wanted my mind to be clear. I forced myself to fall asleep early in the evening and get up before the dawn many times. I forced myself to put up with my cruel doctor, I forced myself to lay through painful MRIs, listen to his jokes about how my ass was so big, the radiation from the x-rays couldn’t penetrate it and hit the film. I forced myself to agree with him that rather than focus on cancer, I should focus on losing weight and getting weightloss surgery. All his talk of my weight made me insane.
I thought in the end it would be worth it all.
But I didn’t get that happy ending.
All that hard work didn’t pay off.
All it got me was deleted, blocked, ignored, filtered, and phased out.
It’s my fault. I don’t blame anyone who did any of that to me. I kept my physical therapy to myself. I wanted it to be this big surprise. I wanted to have this huge celebration where I was well and could move. Instead, it back-fired.
So I quit.
It’s not worth trying anymore because the harder I try, the more people push me away. I tried so hard. And that’s what I got in the end.
Back in September, Matt joked to me that I was becoming Roxanna. Maybe I am. Maybe I am as bad and rotten and evil as she is and I’m just now realising it? Maybe this is my punishment for not giving her all that she wanted or demanded, for protecting me and mine.
I have deleted two of my blogs. Yanked them off the web. I told Matt on the way home that he needs to find his own hosting. I was sorry. I am burning DVDs for my friend that I have failed; when they are done burning, I will mail them out, though I am sure this person doesn’t want anything more to do with me.
I understand that people will want to unfriend me over this. I am fine with that. What I have written is not out of emotion or hysteria. It’s honest. I have been calm and collected through out writing this. It will mirror on the one blog that I am keeping. I will also be keeping my journals. I don’t expect anyone to pick sides, nor do I expect anyone to be sympathetic with me. I am just putting this out there to be read and known. I wasn’t hiding or trying to be a bad friend. I was trying to help myself so I could be a better friend. That’s what I get for trying, huh?
My site is finally functional again. I wish I could say my hosts fixed the PHP, but it doesn’t appear that is going to happen anytime soon. *sigh* is it too much to ask for cheap, modern hosting? To make matters worse, my DVD burner (on the computer) refused to burn any discs. Turns out the lens was dirty, after I bought 150 different discs for it. I’m not kidding. I bought DVD-R, DVD+R, DVD-RW, Memorex, Sony, Apple, none of them would burn. Then it was suggested that I clean the lens with the little CD/CDROM lens cleaner I bought back in the ’90s with the little brush on the CD. After some weird noises from my CD drive, it’s burning beautifully. Both DVD-R and DVD+R. Anyone want any movies??? Seriously! I’m up to my ears in CDs here and I need to get rid of them!! How about the Simpsons, Family Guy and American Dad Halloween specials?? My computer’s drive copies DVDs made from my new burner beautifully! Free shipping if you say yes!
I had a treatment today. It caused some vision disturbances. I think. I was having the problem last night, so I don’t know if my treatment caused it or it’s something else. I fell asleep during the treatment. When I woke up, I was stiff and cramped. I came home and slept a few more hours, and here I am. Burning movies and waiting for my site to get back in shape. I wasn’t given any pain medication this time, which was strange. I won’t get to see Doc Mick until Monday. Monday is too late for me to go to a good friend’s wedding. That was what I was working towards doing. Learning to drive long distances. Learning to not need so much medicine that I could not think properly. Doc Mick told me I didn’t need to think properly anymore because I had Matt to help me get around, but he’s going home on Tuesday. Yep, I have to learn to make it on my own. After Thanksgiving, my husband is going on the road for a little while, and I’ll be at the mercy of the world again.
The vast majority of my depression and various drug over doses these past few weeks were based on the fact that I could not get to this friend’s wedding. I was one of the first people she told, and I feel that she is mad at me because of this. I feel that I have let her down in a way that is unforgivable, and having cancer or being in pain is no reason to miss something like this. I even went out last month and spiced up my old even gown. But in the end, I failed. That’s what I do best, isn’t it? Fail. Let people down. Let myself down. That triggers depression, which triggers self-destructive thoughts and actions. When I get back on my own I can’t be self-destructive again. Being the one that everyone else is going to lean on, I cannot be weak. But I feel I am. I feel I will not win this time. I feel many things. None of them are good.
I can’t get the comments to come through. Oh well. That’s what I get for patiently waiting for the website to come back after being down for hours today. Sorry to those of you who couldn’t get here all day. How many people have given up on me? ha.
I fixed my computer’s burner, it was dirty. I ran a 15 year old CD cleaning disc through it (the kind with the little brush built onto the CD), and it’s burning DVD-R and DVD+R just fine now. It’s also copying the DVDs my DVD burner made, so I’m happy for that.
I told Matt I wanted a change, and he said I should pierce my lip, dye and cut my hair in one of those bad hair styles teenagers have, that makes one look like they were run over by a lawnmower and a dye bottle at the same time, and change my name to Katt Savage. Hmm. Maybe I’ll be friends with Peggy Hill, too, who will shake some sanity back into me.
Treatment is tomorrow. This time, I’m told to be prepared to lose my hair.
With laundry to sort and things to get done (ie: DVDs to burn), I need to get on with things.
Last but not least, I have made my decision on which blog I am going to keep. Here’s a hint: If you can advertise on it through EntreCard, I’m keeping it. Happy hunting!

In lieu of wearing purple, Matt dyed my hair purple. Hey, it doesn’t get any gayer than that! A gay guy dying a woman’s hair purple! And my scalp. And the top half of my night shirt, which I am still wearing for some reason. And my sink. And several of the tiles on the kitchen floor. And three towels. And his fingers. And…well, you get the idea.