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Archive for the ‘Illness’ Category

With All My Heart

Tonight was a milestone for me in my road to recovery. I was able to have a bath (on my own!), brushed my teeth, and before all that, I had a solid meal for the first time in a loooong time! Woo hoo! I then coated myself in a thin blanket of clindamycin and phosphate because I’m sick to death of these damned MRSA sores all over me, and now I’m bundled up in bed for the night, clicking away at the keyboard, updating on my life that is of little importance to anyone reading this (kidding! I know you all love me, right?).

One of the things that I need to bring up is that I have an appointment with Doc Dan on April 28th. He seemed very happy to be having me over for that appointment, because he has something to tell me. I’m hoping and praying, with all my heart, that what he has to tell me is that I am in remission. The original schedule for my treatments is supposed to end in June, but the transplant I had last month is supposed to cure me of the illness. Cure as in throw me into remission. Which is a good thing. It makes losing my hair a couple of weeks ago, vomiting non-stop for a week (it’s slowed down today), passing blood from being on blood thinners, and generally feeling like shit, worth it all. Because I will be free. Free of the ties of this horrific illness that has stolen my life and livelihood since last year. This horrible illness that has thrown my social life off the track, caused me to wreck the best car in the world, ruined my knees and back, and teeth. This disease that never seems to give up. I may have it beaten. I may have laughed in its face and won the war. I’ve lost many battles in this war, but I have never given up. I have never had to kneel.

Lately I’ve been living vicariously through my brother. He recovered well, being just the donor. After the first few days, he was no longer tired, and went back to his normally scheduled life. Me, on the other hand, had to be isolated from my kids and life for four to six weeks. I had to receive a mega dose of a cocktail of poisons to kill off the bone marrow that was already in me. Solid foods were taken away from me. On top of all of that, I was still given anti-diabetes medications, and my narcotics were taken away, so I was suffering. When I was given more narcotics, I feel I abused them because I finished them twenty days early. I watch Chloe and her cousins, Christina and Kathleena playing in Scott’s fenced in front yard. I watch James and Ashe splash around in a wading pool for the first time. I wish, with all my heart, that I could be with them. They don’t seem to miss their momma at all. I don’t know what breaks my heart more; the fact that I can’t join them in their play or the fact that they don’t seem to miss me at all. I watch my brother live this good life that I once had. Before the sickness. Before the fear. I know that one day I will be able to say that I am no longer sick nor afraid. I just wish that day was today. It’s pretty sad when you wish you could shop for groceries or be able to wash your hair, or even prepare your own food. Being waited on hand and foot is not as glamourous as one might think.

On that note, I’m off to bed. G’Night!


Echoed in the Wells of Silence

I want to first thank anyone who sent things to me while I was in the hospital. Especially the ice cream! OMG! THE ICE CREAM! I think I’m the only person in medical history to gain weight on a liquid diet because I had so many pints of Ben and Jerry’s ice cream! But it was good. Even the Chunky Monkey. :) I know, I know, Chunky Monkey isn’t really a “liquid diet” but it’s still ice cream, so it passes all tests. Ice cream cannot be evil. ; D The iTunes cards were put to good use. I downloaded games and videos and music to keep me company and sane. Last, there were more stuffed animals than I can count. I guess I really am loved. *warm and fuzzy feelings*

Tonight I got to talk to Dennis for a little while. I thought he was coming home, to see me for a little while, but I don’t think that will happen yet. I think that window has been passed. He said he had bad dreams for a long time, that I had died during the transplant, that something went wrong and I was dying (it didn’t, and I’m not!), or that I was permanently disabled from the procedure. I wanted to laugh because even though those are risks of transplants, they are very rare risks. I assured him that Scott and Gabbers (my sister-in-law) are taking extra good care of me until I can take care of myself and get home. I then got a nice little treat: He sang to me. The Sounds of Silence. With a sitar compilation. It was beautiful. Why he has never recorded this, I don’t know. But I feel sort of lucky and special to be the only one to have heard this. :)

After hanging up from talking to Dennis, I worked on my list of things to do when I can do them. It’s getting longer and longer. The top three things I want to do: Have a tumbling match with Chloe, go to the dog park, and go back and see a live show. Ballet. Opera. Something. I want to experience that again. I dunno why. I guess because I only got to see a live show while I was studying dance and only then because my nephew was in the show. The list is something to look forward to. Other than that, it’s mostly boring stuff: Clean out from behind the bed, liquidate more CDs, kill the toilet monster, things like that. Nothing really that interesting.

So how am I? Physically, not too well. I’m throwing up again, every two hours. You can set your watch to it. I’ll be fine for about forty-five minutes, and then I’ll start having severe stomach pains and then after an hour, I’ll throw up for five minutes straight. I called my doctor, the lovely man that I was referred to by my (ASSHOLE!) doctor back home, and all he had to tell me was not to call his cell phone on the weekends; if I’m sick, call his office on Monday and make an appointment. Do these (ASSHOLE) doctors just hang out together? Damn. Even my oncologists take calls on their phones during the weekend or after hours. Maybe I’ll call Doc Mick. He’s always said I was a good patient and wanted to help me.

I will get well. I promise.


Recovering

I almost forgot to post today.

I’ve been “home” for a couple of days now. I still don’t have the strength to post all that has happened, other than I feel like shit, and the heartburn has returned full blast. I wish there was a way I could get rid of it forever. I also owe my brother more than I can ever pay him back. If he hadn’t made that donation of marrow, I wouldn’t have lived much longer. The goal now is to keep me alive for as long as possible. Pain free, that is. I was put on the Fentanyl patch (oooo….! 24 hours of opioid!) and I’ve started another steno book with goals to clean out my house once I am physically able to. My left knee is hurting so bad, but I can’t get to the doctor until I pay $6,000 in back bills. I guess I let the surgeries and things just pile up. Shame on me. At least the weather is warmer. Perhaps I can go to my real home soon. I hope so, anyway.

I’m sleepy, so I will leave you with some pictures. Be nice to Matt on EntreCard. He’s doing my drops for me these days!

What in the world did Matt do to my bed?

Slept in it, of course! No picture of the bed is complete without the dog crashed in the middle of the mess.

Good bye, March. The final sunsets for March 2011:

Smile! This world is really a beautiful place!


A Post Before Packing

I’m running on empty. I have to. Just a few more hours, and I will be in Texas, ready for the procedure on Friday, chemically comatised and dead to the world. All the arrangements have been made, the kids will be well taken care of, and my workplace has offered to hold my job for me; they went the extra mile and told me I was off until June, when the summer courses start. Isn’t that nice? A three-month vacation.

I haven’t heard from the person who turned me in. It’s as if they disappeared off the face of the earth, and I couldn’t care less. They think what they did was sly, funny, and cute, but what it did in reality, was dirty and cruel. Right now, any money that I want to play around with, I have to earn it. Dennis’ money is going towards our bills and my medical procedures. I was shocked this person turned on me like they did, but in the end, I guess I was expecting it. I’m just glad the whole thing didn’t go any further and when it was proven that I was not intoxicated at work, they were written off as a liar and the University washed their hands of the whole mess. I’m now wondering if they were the one who reported me three and a half years ago, when I was reported for a similar ordeal. They used the illusion that many people disliked me, and I bought into that illusion. I took comfort in knowing that person was there for me. Then I was mysteriously reported for being pregnant and partying down on a drug that has zero recreational value. I’m sure that person knew that, but they were just causing trouble.

I am going to finish packing and rest a bit until my ride is here. Yes, I’m heading out tonight. I’ll try to make a small post tomorrow to let everyone know that I am doing okay and they shouldn’t worry. My pain is pretty bad, nothing relieves it but bed rest. That shouldn’t be happening. I should not be in this much pain, physically. I overheard my mother talking to someone on the phone, probably her mother, about how invalid I am because I will be putting her 100 DVDs on hold while I go in for this procedure. Even though I have told her that I will continue to make the DVDs when I get back, and she will have two full shows plus several movies she can watch in the meantime, I’m sure she won’t run out of things to watch, I am still an invalid. She brags about her co-workers’ adult children, and how, even though they are greedy and demand fast food and gas money plus cash as payment for taking their sick and elderly family members out to buy medicine, and demand the relatives buy for their friends, too, they are wonderful because they do it without taking a break. I wonder how many of them are seriously ill? Hearing her tell this to someone made me cry. What’s the point in helping my mother if nothing will ever please her, and I am the black sheep because she chose to sleep around and have me? If she was so ashamed of getting pregnant by another man, she should have had an abortion. Point blank. They were legal in 1980.

The key in my life that many people miss is that I am seriously ill. I’m not given high doses of dangerous medicines because I want something to do on the weekends. I am sick. I am in pain. Very few, if any, of the medicines really work for me. Much of my day is spent in pain. Chloe has to come to me and tell me at my bedside about her day. On most days, I cannot pick her up from school because of the pain. I have to rely on my father in law. I hope this procedure will fix much of that. I welcome your happy thoughts, good vibes, and prayers!

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